I'm back to the ol' holding pattern, fending off pain and waiting for my doctors to give me appointments. I have to admit, I'm not pushing much and just letting things happen in a relaxed fashion. I just feel a little lost. I had just graduated to not quite being followed by my doctors like I could self combust at any moment. I just really want to be left alone.
Avoiding the doctors though, would mean surgery and other nasty things in the future. I try my best to be a good little patient but really I want to run away and never go back. That's not too helpful to my body so I have to suck it up.
I made a list the night before last, of all the symptoms that have come back. Dry eyes, vaginal pain, peeling lips, all over body pain, arthritic pain and a spastic bowel. I'm wondering now if the body pain is actually a symptom of the graft vs host? It came back suddenly and at the same time as everything else.
So, just waiting....