Financial Hemorrhage

"Hi, I need to renew a prescription ..."

-words repeated much too frequently
-the primary cause of the hemorrhaging of money
-why my pharmacists are on speed dial

Way Tired

I'm really dragging my feet, this severe sleep deprivation is really getting to me. I stopped sleeping after my transplant. The doctors keep switching up all my medications and I'm pretty sure it's going to get better? All I know is my daily functioning level has been on the floor since August 1st, when I switched to amtitryptoline (that is likely spelled wrong but I'm to tired to go look up the correct spelling).

I think this is the last big hurdle to getting my life back and getting back to work. Right now I feel severely overwhelmed by not much. I went to the doc a few days ago and I could hardly string a sentence together. I apologized and he said that's pretty normal considering. He changed up my meds again and I'm hopeful it will work. I'm pretty damned fed up with this.

I remember as a kid my mom telling me that some people had disorders, where they couldn't sleep. I think I had seen an article or something about it and had asked. I remember thinking how absurd, how could not sleeping do such terrible things to people?

Weird thing is, my mom and I are going through menopause at the same time and she can't sleep either. This is so awful, I just can't manage. I have stuff to do.

The BIG Oncologist Appointment -Dun dun duuuHn!

WooHoo! I'm so excited! I'm in bed thinking about my oncologist appointment tomorrow. It will be a long day but this is an appointment I've been waiting for for a while. My surgery is done and my blood looks good, liver enzymes and all of that. My liver is happy so I'm happy too! My creatinine level is about the only thing that is off and that is because of my cyclosporin (anti rejection drug).

I know my oncologist likes to say, "don't get too excited", so I'll just jump up and down now before I get there! I'm expecting a huge change in my medications. I'm expecting to be taken off several things that make me sick! ! ! I should be started on my immunization schedule as well. I'm a blank slate right now with no immunities to anything. My transplant was like an immune system-reboot. I could catch anything and everything so I have to be hyper vigilant to stay healthy.

This appointment should be a major step forward for me to getting better. A new era has arrived! So hopefully this regime will look a little different tomorrow;



I have a million questions to ask like;

Dr, why don't my hands work? I'm an artist, I need my hands.
Dr, can I leave the country any time soon?
Dr, when is this debilitating fatigue going to end?
Dr, when will I get back my cognitive functioning? Is this chemo brain going to last forever?
Dr, when should I be able to expect to be a bit more like myself again?
Dr, why?

I'm going to hound her about everything under the sun because I CAN.

I know what she will say. Exercise more. Exercise = Good.

I'll try and get her to do the happy dance with me.


And this will be SO out of date!

I'm going to end this with my maniacal, over excited, jumping to conclusions, laughter HAhahaHAhhA!

Today